What a long week it has been.
I’ve been avoiding this. This writing stuff. Mostly because I wasn’t in a place to be sharing all the emotions and hard things that have happened this week. There’s definitely been some pretty low valleys, but we’ve also had some exciting mountaintop experiences. Here’s a recap!
To start off, I just want to say how super thankful I am that Children’s scheduled us early. Because Afton needed to receive general anesthesia, she couldn’t eat after midnight. For a baby, that’s tough! We’re pretty fortunate that Afton sleeps through the night, so we really didn’t need to worry about this.
Our appointment was at 7:30am, so of course we were late (lovely Cincinnati traffic), but nonetheless, we got there around 7:45am. We got checked in and waited to be taken back. Everyone was so nice. Afton, though, wanted nothing to do with anyone wearing scrubs. We credit that to her one-year wellness visit the previous day where she received 3 shots and a toe prick.
We had nurses, MRI, and Dr. Sturm come by to see us before casting. They all just gave us general information on what to expect from the procedure. About 8:45am, we were told to put on some yellow paper gowns, paper booties over our feet, and hair nets (I felt like I was in an episode of Grey’s) and we headed towards the OR. Unfortunately, Children’s is under some construction, so their induction room was currently non-existent, which for us meant that we couldn’t go back with Afton. They were taking her straight into the OR to administer the anesthesia. We gave our brave girl all the kisses and big hugs, and handed her to one of the nurses.
Cue all the tears from everyone, especially mama and baby.
We were escorted back to the exam room to pick up our things, then headed out into the waiting area.
Afton was casted first, which only takes 30-45 minutes. Then, they were taking her to get an MRI of her spine. I can’t remember if I had talked about this in a previous blog post, but the reason for the MRI was to rule out any underlying causes for her scoliosis. The MRI took 45 minutes, then they took her to recovery. (We’ve since then received those results, and everything came back just fine!)
I can’t remember what time it was when we got to see her, but I can tell you the waiting felt like an eternity. While we waited, we got to visit with one of my co-workers and her family. Her little girl was having a procedure done that morning as well. I was definitely thankful for the distraction. Please keep them in your prayers as she continues to recover. We are raising some brave little girls. 🙂
We were called back to a consult room (before we could see Afton) where Dr. Sturm came in to update us on how she did during the procedure. She did great and he was very optimistic that casting Afton for at least a year, if not longer, would greatly improve the curve in her spine. He told us that her curve had been 78 degrees, but now the cast is currently holding her at 31 degrees. He hopes to retain these improvements with each cast.
After a little more waiting, we got to see our baby girl.
Looking back, I wish they would’ve given us the info we needed while we waited, instead of waiting until we got to see Afton in recovery. My focus was on holding my baby as soon as possible. Nothing else mattered.
She woke up from anesthesia just fine. Unfortunately, she awoke without mommy or daddy there, so she was whimpering when we walked in. It was so pitiful. I scooped her up and held her for a while. Once we felt ready, we got her dressed and headed home.
The first 2-3 days at home were horrible. Sleeping at night was like having a newborn all over again. The cast just isn’t comfortable, and she can’t move as easy as she once did. The most frustrating part has been watching her struggle to do the things she had mastered. Rolling, sitting up, army crawling…the added weight of the cast and just the awkwardness of it has greatly hindered her mobility. We would sit next to her on the floor and she would just lay there. She would see something close by and try to roll to reach, and she couldn’t. She would get so upset, even throwing temper tantrums, because she couldn’t move. Our hearts just couldn’t handle it. These days were the darkest of valleys.
The past few days have been so much better, though. Her physical therapist came on Wednesday and was able to get her to roll and even army crawl! Who knew the power that some Cheerios could hold! Afton was a champ, and I didn’t feel one bit embarrassed for the tears in my eyes as I watched her army crawl. This mountaintop could barely contain how bright my baby was shining.
We are thrilled to have found a network of people who are going through these same trials. It’s been really helpful learning the “tricks of the trade”.
There are still things we are learning how to do daily. For example, it hasn’t been the easiest figuring out the best way to put her diaper on. This sounds silly, but it’s difficult because her cast can’t get wet/dirty. The cast also comes down pretty far at the bottom, so we have to get creative with it. We’re constantly worried about blowouts. I never thought I’d be putting a feminine product on my baby, but I have and will continue to do so! They help tremendously with the occasional blowout (we place it in the back of her cast – who knew!?)
It’s also been hard having a cast just because she sweats quite a bit. We had a couple of days where the weather was nice, and we were able to go outside and not worry about her sweating so much. She had a lot of fun at the zoo on one of those cooler days!
Since she can’t get wet, bath time has been interesting. She can’t get into the tub, so we give her sponge baths. We’ve purchased some long sleeve water proof bibs that she wears when it’s time to wash her hair. It seems to work really well! Josh and I are getting pretty good at it now. It definitely takes the two of us.
Now that it’s been a little over a week, it’s easier to talk about all of this.
In some ways, it seems crazy that we have been stressed and worried about a cast being put on our baby. I mean, it’s just a cast. Plaster, molded to fit onto our child’s body.
My child has scoliosis. She has to wear a cast. This is a big deal.
We are stressed and constantly praying that she won’t need casted for too long, or even have to undergo surgery when it’s all said and done.
We’re praying for a miracle. We know it can happen because we serve a God who has already given us a miracle. I get to rock that miracle to sleep every night.
Afton has been such a trooper through all of this. It’s amazing to me what she has already accomplished. I’m excited to see what else she’ll learn to do in the coming months!
Thank you for the prayers – they mean the world to us!